video1.0<iframe src="https://www.loom.com/embed/a12a8550eb04419690b4d2027cdd488a" frameborder="0" width="1920" height="1440" webkitallowfullscreen mozallowfullscreen allowfullscreen></iframe>14401920Loomhttps://www.loom.com14401920https://cdn.loom.com/sessions/thumbnails/a12a8550eb04419690b4d2027cdd488a-00001.gif3225.219Hi there! In this video, I want to share some important information about joining Simon's Searchlight research program. As a founder and CFO of the DYNC1H1 association, I'm passionate about gathering participants and families affected by genetic conditions like DY and C1H1. By partnering with patient advocacy communities, we aim to provide researchers with the support they need. I'll explain how you can join our research program, the types of surveys and tasks involved, and the benefits of participating. So, let's get started!